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JoAnna Johnson

"The Soul Stringer"

Random Rants of a Lupie Lady


How To Make a Meaningful Difference in The Life of a Lupus Patient

Posted on May 22, 2013 at 1:10 PM
Still keeping in mind the mental and emotional ramifications of Lupus, yesterday I posted some Don'ts. Today, let's talk about some DO's that make a difference.

First and foremost...
DO research and learn about our disease. Many still have no clue what lupus is and those that do don't have a clear understanding of all it entails, so do your homework. That will let you loved one know that you are truly concerned about them. 

DO share what you have learned with others!!!  The only way to raise awareness is through education.  You are helping with that every time you talk about Lupus.

DO reach out to your Lupus loves to check on them. Yes it is a two way street, but Lupus patients tend to run and hide when not feeling well.

Do consider the environment when asking patients to accompany you on outings. There are a lot of factors that could derail a good time for a person with Lupus, both expected and unexpected. Consider proper shading for outside events as we are sensitive to the sun. Consider inside temperatures as well and distances for walking to and from the car, stairs, etc.

DO accompany them to their appointments if you can. Dealing with the medical community is very frustrating for patients. Having your support is priceless and can help to keep the patient from being overly stressed.

DO assist them with mundane tasks around the house. Simple gestures can go a long way. Remember that due to pain and fatigue, simple task like washing dishes or vacuuming the floor can be extremely painful and even impossible.

DO remember that our immune systems are highly compromised and most of us take immune suppressing drugs, so...PLEASE KEEP YOUR GERMS TO YOURSELF!!! LOL
I appreciate that colds and viruses are a part of life, but in the life of a Lupus patient, a three day cold can mean at least a couple of weeks worth of downtime and can even cause a Lupus flair that could cause a hospital stay. 

DO remember that we are human with feelings and require the same things to survive. We have the same basic essential needs as every other person on the planet. But in addition to that we need an extra dose of consideration, common courtesy, laughter and love just like everybody else...but most of all we need your support.

#PleaseShare #LupusAwareness #stopwhisperingandYELL!!!!

Categories: Random

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2:03 PM on June 15, 2013 
The only way to raise awareness is through education. You are helping with that every time you talk about Lupus.
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3:24 AM on March 9, 2014 
Its very good and very excellent article. i really enjoyed this post and i hope you will keep posting this kinds of post in future.
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Reply Shawn
4:54 PM on October 13, 2022 
Former Turkish President Demirel, twice toppled by military, dies at 90 - hospital
By Reuters

Published: 09:07 BST, 17 June 2015 | Updated: 09:07 BST, 17 June 2015


By David Dolan and Orhan Coskun

ANKARA, June 17 (Reuters) - Former Turkish President Suleyman Demirel, who was twice toppled by the military during seven stints as
the head of government, died early on Wednesday, according
to a hospital official and Turkish media.

He was 90.

Demirel, who served as prime minister seven times through the 1960s to the 1990s and was president from 1993 to 2000, died
at the Guven Hospital in Ankara, where he had been undergoing
treatment for a respiratory tract infection, a hospital
official told Reuters.

"Mr Demirel, who was conscious until his very last moment, has said goodbye in a peaceful and proud way,"
his doctor, Aylin Cesur, told reporters outside the Ankara hospital
in comments broadcast by CNN Turk television.

Born to a farming family in the western Turkish province of Isparta in November 1924, Demirel trained as a civil
engineer, according to an official government biography.

He first came to power in general elections held five years after a 1960 coup,
at the head of the Justice Party.

He inherited his mostly rural power base from the former Democrat Party, which had been banned by the military.

"The progress that Turkey's industry and development and its democracy has made is thanks to Demirel's patriotism and bravery," Esat Kiratlioglu, a former
minister who worked in a Demirel cabinet, told Turkey's CNN Turk television.

Demirel had no children but was known as ""Baba", or "Dad", to his fans in Turkey's farming heartland during his years in power. He served during a period of unstable coalitions in NATO-member Turkey that was brought to an end when the ruling AK Party, founded by President Tayyip Erdogan, came to power in 2002.

Turkey now faces a return to coalition politics after the AKP failed to secure a majority in June 7 elections, in a big setback for a party that has transformed the country into one of the world's top 20 economies.

Erdogan and Prime Minister Ahmet Davutoglu paid tribute to Demirel.

"Suleyman Demirel, who has contributed greatly to the development process of
our country and has left deep marks in Turkey's politics is one of
the most important figures of our political history," Erdogan said in a written statement.

Davutoglu said Demirel's 'unique style' will be remembered.

"He was a politician who will always be remembered by...

the services he has given to our country throughout his long political career," Davutoglu said on Twitter. (Writing by David Dolan and Humeyra Pamuk; Editing by Larry King and Hugh Lawson)